Abstract:
The purpose of this study is to investigate the social and emotional difficulties that are experienced by families of thalassemia patients in Islamabad, Pakistan. The qualitative research that was conducted, served as the source of inspiration. Participant observation, unstructured talks, interviews with key informants, a life history approach, and in-depth interviews were some of the qualitative methods that were utilized throughout the research process. To shed light on the effects of socioeconomic situations, cultural beliefs, and the dynamics of the healthcare system, the study investigates the healing procedures that are utilized in Islamabad. In thalassemia, families battle with particular socio-emotional challenges. The practices of religious belief play a role in creating views, reflecting the larger landscape of healthcare more generally. When it comes to embracing contemporary health practices for thalassemia, there are substantial challenges that include poverty, political economy, and a positive belief in religious rituals. The insufficiency of the health services provided by the government, in conjunction with the obstacles posed by organizations and cultures, makes the difficulties that families who are looking for help for thalassemia patients confront even more difficult. Furthermore, the findings in Islamabad are validated by the study since it highlights the stressed relationship that exists between the local population and the health services provided by the government authorities. The provision of necessary services to patients who are afflicted with thalassemia is hampered by allegations of corruption, power-based relationships, and the actions of healthcare professionals working in public institutions. The findings of the study on traditional therapy approaches are consistent with the notion that religious prejudices have a role in reinforcing a reluctance to adopt modern treatment. The socio-emotional obstacles that families dealing with thalassemia face are numerous and include issues such as poverty, cultural values, belief systems, and a lack of trust in the healthcare system. Recommendations for targeted treatments and enhanced healthcare delivery are presented, with an emphasis placed on the significance of community engagement and cultural sensitivity in the process of supporting the well-being of thalassemia patients and their families.
